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Only scant attention has been given to the issue of children's bioethics. Even when such a discourse took place, it hardly touched upon children as social agents. In this novel work, Maya Sabatello looks at the "body politics" of religious and cultural medical practices - from "harmful traditional practices" to genetic engineering. Building on literature from medical anthropology, cultural studies, disability studies, social sciences, and law, she explores the international discourse on children's bioethics from a previously uncharted child-centered approach. In light of the existing multiculturalism, she contends that in the discourse on children's bioethics, not only must the medical, social and, anthropological nexus of the child be taken into account, but that incorporating identity claims into the legal discourse is also essential for the child's voice to be heard.

Tabla de contenidos provista por Syndetics

• Acknowledgments(p. xi)
• List of Abbreviations and Acronyms(p. xiii)
• Introduction(p. xv)
• Chapter 1 Using International Human Rights Framework to Study Bioethics(p. 1)
• A International Human Rights and Bioethics: An Inxtricable Connection(p. 1)
• B Medical Cultures(p. 2)
• 1 Historical Context(p. 2)
• 2 The Principlism Approach and Its Critique(p. 3)
• C Children, Bioethics, and Medical Culture(p. 7)
• 1 Children, Body, and Culture(p. 8)
• 2 Children's Bioethics(p. 10)
• D Children's Bioethics and the Question of Agency(p. 16)
• 1 Children and Social Agency(p. 16)
• 2 Children, Citizenship, and Participation(p. 18)
• 3 Children's Agency and Bioethics(p. 19)
• E Conclusion(p. 22)
• Chapter 2 Children's Bioethics in the Convention on the Rights of the Child: Historical Overview of the Drafting Process(p. 25)
• A Drafting the Children's Convention(p. 27)
• B The Innovative Creed of the Children's Convention(p. 29)
• C Drafting Children's Bioethics into the Children's Convention(p. 33)
• 1 Scope of the Study(p. 33)
• 2 Difficulties with the Process of Categorization(p. 33)
• D Categories of Biomedical Practices(p. 36)
• 1 Informed Consent(p. 36)
• a Respect for Children's Views on Medical Treatment(p. 36)
• b Informed Consent, Medical Treatment, and Experimentation(p. 38)
• 2 Harmful Traditional Practices(p. 41)
• a Female Circumcision(p. 42)
• b Experimentation, Scientific Developments, and Genetic Manipulation(p. 45)
• c Medicalization, Drugs, and Children(p. 47)
• E Who Won, Who Lost?(p. 49)
• 1 Children's Bioethics in View of the Children's Convention's Holistic Approach(p. 52)
• 2 Children's Bioethics in View of the Children's Convention's Innovative Creed: Children's Development, Agency, and Right to Identity(p. 55)
• a Right to Life, Survival, and Development(p. 56)
• b Children's Agency(p. 56)
• c The Child's Right to Identity(p. 57)
• 3 Children's Bioethics in View of the Children's Committee's Jurisprudence(p. 59)
• 4 Other International Instruments Addressing Children's Bioethics(p. 62)
• F Conclusion(p. 65)
• Chapter 3 Traditional Bodily Practices: Case Studies(p. 67)
• A Case Selection(p. 67)
• B Traditional Body Practices: Background and Context(p. 70)
• 1 Male Circumcision(p. 70)
• 2 Tribal Marks(p. 75)
• a Tatooing(p. 76)
• b Scarification(p. 77)
• 3 Milk Teeth Extraction(p. 79)
• 4 Neck Elongation: The Case of the "Padaung Girls"(p. 85)
• C Conclusion(p. 89)
• Chapter 4 Children's Bioethics and the Framework of Analysis(p. 91)
• A Theoretical Framework of Human Rights(p. 94)
• 1 Group Rights and Human Rights(p. 94)
• 2 Group Rights and Children(p. 99)
• B Bodily Practices and Cultural Conflicts(p. 105)
• 1 Cultural Bodily Encounters on the National Level(p. 105)
• 2 Evaluating Cultural Bodily Practices on the International Level(p. 110)
• a The Majority/Minority Rule on the International Level: An Acceptable Analogy?(p. 110)
• b International Cross-Cultural Evaluation, Bodily Practices, and Imperialism(p. 111)
• C Conclusion(p. 116)
• Chapter 5 Biomedical Practices and the Child: Rights in Question(p. 119)
• A Abuse and Neglect(p. 120)
• B Torture, Cruel, Inhuman, and Degrading Treatment(p. 127)
• C Freedom from Violence(p. 131)
• D Freedom of Thought, Conscience, and Religion(p. 134)
• 1 Children's Religious Freedom as an Autonomous Right(p. 136)
• 2 Children's Views of Religion(p. 139)
• E Informed Consent(p. 140)
• 1 Doctrine of Informed Consent-Historical Context(p. 140)
• 2 Children's Religio-Cultural Bodily Practices and Informed Consent(p. 144)
• F Conclusion(p. 149)
• Chapter 6 Rights Discourse, Children, and Bioethics(p. 153)
• A Culture, Cultural Rights, and Cultural Identity(p. 154)
• B Biomedical Practices as Cultural Rights(p. 158)
• C Children as Bearers of (Biomedical) Cultural Rights(p. 163)
• 1 Do Children Have Rights?(p. 165)
• 2 The Relational Approach/Ethic of Care(p. 169)
• a The Relational Approach and Children's Bioethics(p. 172)
• b Arguments against the Relational Approach(p. 176)
• D Children's Cultural Identity(p. 177)
• 1 The Child's Right to Identity under the Children's Convention(p. 181)
• 2 The Children's Committee Analysis(p. 182)
• 3 Children as a Minority Group(p. 186)
• E Children's Bioethics in Practice(p. 187)
• 1 State Responsibilities to "Respect, Protect, and Fulfill"(p. 188)
• 2 State Responsibilities and the Child's Right to Biomedical Identity: A Dual Model(p. 189)
• F Conclusion(p. 195)
• Chapter 7 Broadening the Lens: Genetic Manipulation(p. 197)
• A Genetic Manipulations(p. 198)
• B Why Disability-Related Practices?(p. 199)
• C Genetic Selection of Children's Characteristics: A Part of Parental Reproductive Freedom?(p. 202)
• D Scientific Progress and Children(p. 207)
• 1 Status of the Fetus under International Law(p. 208)
• E The Child's "Right to a Sound Mind and Body"(p. 211)
• 1 Are Genetic Interventions for Disability-Related Reasons Medically Justified?(p. 213)
• 2 "Disabled Identity"?(p. 215)
• 3 Purposeful Parental Selection for and against Disability-A Valid Comparison?(p. 220)
• F Conclusion(p. 224)
• Chapter 8 Conclusion(p. 227)
• A Considerations under the Physical Path(p. 233)
• B Considerations under the Identity Path(p. 237)
• C Resolution of Biomedical Conflicts(p. 240)
• 1 Majority's Biomedical Practices(p. 241)
• 2 Minority's Biomedical Practices(p. 242)
• 3 Mixed Minority/Majority Biomedical Practices(p. 246)
• 4 Genetic Manipulation, Disability, and Deafness by Choice(p. 247)
• D Children's Bioethics: A Reevaluation(p. 249)
• Bibliography(p. 251)
• Court Cases(p. 251)
• International Documents(p. 251)
• Sources(p. 257)
• Index(p. 281)

Notas de autor provistas por Syndetics

Maya Sabatello, L.L.B., Ph.D., teaches at the Center for Global Affairs, New York University. She has published on the rights of persons with disabilities and bioethics and participated in the UN drafting of the Convention on the Rights of Persons with Disabilities.